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Porphyrias

Porphyrias

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Check it out the following sites about Porphyrias, or search Porphyrias

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 Links

» Acute Intermittent Porphyria Forum - Information and links about Porph. Includes registration form for an email list.
» Canadian Porphyria Foundation - Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
» Diagnosing the Porphyrias - An article by Thomas G. DeLoughery, Associate Professor of Medicine.
» EPP - Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
» King George II and Porphyria - Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
» Me and AIP - Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
» Porphgroup - An e-mail group at Yahoo dealing with the metabolic disease porphyria.
» Porphyria - From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
» Porphyria Hub - Links to overviews, full text articles, diagnosis and treatment and research projects.
» Porphyria Page - A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
» Porphyria: The Unknown Disease - Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
» Porphyria: The Woman Who Has The Vampire Disease - Review on this book on porphyria written by Lenore B. Weinstein.
» Porphyrias: Diagnosis and Treatment - Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
» Prophyria in Charlottesville - An e-mail sent to Professor Huskey from a person working on a rescue squad.
» Suite 101 - Offers links and articles about Porphyria.
» The American Porphyria Foundation - Non-profit organization advancing awareness, research, and treatment of Porphyria. Fact sheets and links to related resources.

 
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