Tuberous Sclerosis

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» Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program - Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
» Information and support for persons affected by Tuberous Sclerosis Complex in Canada. - Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.
» Kolten's Tuberous Sclerosis Page - Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
» Marian's Life with Tuberous Sclerosis - Marian's story. Information about the disease, pictures, contacts, medicine, links.
» Matthew's Site for Tuberous Sclerosis Awareness - Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
» NORD: Tuberous Sclerosis - Offers alternative names, a general discussion and further resources.
» National Library of Medicine - A list of synonyms, a summary and major features of tuberous sclerosis.
» Pediatric Database - A definition of tuberous sclerosis, followed by the epidemiology, pathogenesis, clinical features, investigations and management.
» Pediatric Oncall- Tuberous Sclerosis - Offers commonly asked questions about this disease.
» TSCTalk - Mailing list and discussion boards for patients and professionals.
» Team Tamara - Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
» Tuberous Sclerosis - A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
» Tuberous Sclerosis - Lisa's Site - An incurable genetic condition that causes tumors to grow in various places in the body.
» Tuberous Sclerosis Alliance - US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
» Tuberous Sclerosis Association - UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
» Tuberous Sclerosis Fact Sheet - Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
» Tuberous Sclerosis Hub - A brief definition of, followed by links to overviews, research articles, case reports and images.