Muscular Dystrophies

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» A Guide for Parents - This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
» Ask NOAH About: Muscular Dystrophy - The basics, genetics, diagnosis, care and treatment, specific types and information resources. From NOAH (New York Online Access to Health).
» Becker Muscular Dystrophy Information Exchange - This web site serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
» DMD Information - Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
» DMD Information and Resources for Teachers - Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
» DMD Options - Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy.
» DMDpioneers.org Forums - Forum about living with Duchenne Muscular Dystrophy. Discuss prolonged survival, daily living and quality of life issues for people with DMD.
» Dr. John R. Bach - The DMD/SMA/ALS Doc - This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care.
» Duchenne/Becker Muscular Dystrophy - Section of Your Genes, Your Health Website focusing on Duchenne and Becker Muscular Dystrophy. Includes key facts and animated slide shows of causes, diagnosis and treatment of Duchenne & Becker Muscular Dystrophy.
» Duchennes - Provides links to medical and non-medical organizations and people with Duchennes problems.
» FSH Friends - This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy.
» General Practice Notebook - Duchenne muscular dystrophy - Clinically-oriented information.
» HealtHub - A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations.
» Living For Today, Preparing For Tomorrow - Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
» MDA Ride For Life - Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
» Muscular Dystrophy Campaign - Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
» Muscular Dystrophy Community - Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers.
» My Life Caring For My Son Who Has Duchenne Muscular Dystrophy - Caring for a child with the following problems duchenne muscular dystrophy,congenital adrenal hypoplasia and glycerol kinase deficiency.
» NINDS Muscular Dystrophy Information Page - Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
» National Registry of Myotonic Dystrophy and FSHD Patients and Family Members - Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.