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Personal Pages

Personal Pages

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» A Fight For A Cure - A personal story about life with lupus.
» But You Don't Look Sick? - Includes personal stories, product reviews, links.
» Follow My Lupus - Follow Brett Borowski from initial diagnosis in 1994 to the present, including treatment with Cytoxan. It includes a narrative account, lab results, medications, and other resources.
» I Fell Down: A Story of Lupus - The author tells about her life with this disease. Find support, links, chat and prayer.
» KC Dockal alt.support.lupus FAQ - Frequently asked questions and answers addressing symptoms, treatments, common diagnostic tests and procedures, and filing for disability in the US and UK. Also includes information on the usernet alt.support.lupus.
» Living with Lupus - Directory and support for people living with this, and other autoimmune conditions, as well as their family and friends.
» Loonie's Lupus Page - Outlines different types of the disease, directory of support and informational sites, and share a personal experience.
» Lupus Family Circle - Information about Lupus, news updates, forums for sharing personal experiences, a support group and resource links.
» Lupus Information Center - Health through knowledge and power: information, statistics, little known facts, common misconceptions, and more than 60 personal stories.
» Lupus Living & Fibromyalgia - Patient and RN present facts and support group for living with the disease.
» Lupus Patients Understanding and Support - Maintained by consultant rheumatologist and featuring information and support for patients and those with variant and other autoimmune connective tissues diseases, such as Hughes syndrome.
» Lupus and Art - Jaynee Levy-Polis shares her personal experience with mild Central Nervous System disease as well as information about symptoms, treatments, and coping.
» Michelle Soignée - Includes photo of discoid rash, causes, and treatment courses.
» Miller, Cyndee - General information, personal experiences, a 30 year Lupus patient, with extensive links.
» Monicas Lupus Story - A Story of a systemic disease sufferer in the UK, with additional informational directory.
» Ritter-Bright, Dionne - After 16 years with SLE she needs a transplant.
» Sarah's Lupus Webpage - Directory of pamphlets, articles, and personal stories to learn more about the disease, coping mechanisms, and support.
» Snapshots of Lupus - A collection of photos and biographies of patients; plus online awareness activities.
» Terri's Angels of Hope - Learn about Terri's struggle, about her disease, and her life through an online journal. Chats and message boards for fellow sufferers including lupus, COPD, and congestive heart failure.
» The Lupie Bin - Lupus information, support, stories and FAQs. Questions from fellow lupies and their friends and family are welcome.
» The Lupus Site - Diagnostic information, tests, medications, advice, support, forum, and survey with over 150 pages of information.
» Wendy's Pages - A web site with Lupus and Fibromyalgia information, links, and personal stories.
» Women's Info Page - Both general and personal disease information, and how to get free medications.

 
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