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Sanfilippo Syndrome

Sanfilippo Syndrome

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» Ben's Dream - Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
» Bennett Children's Foundation - Founded by parents of three young children who suffer from Sanfilippo Syndrome, a degenerative genetic disorder that is usually fatal before the teens. Raising awareness of the condition and enlisting financial support.
» Children's Medical Research Foundation - A non-profit foundation formed to raise and grant funds for research to find a cure for Sanfilippo Syndrome.
» MPS III: Sanfilippo Syndrome - Information, including the causes, different forms, the inheritance and how the disorder progresses.
» NORD: Sanfilippo Syndrome - Offers a list of synonyms, a general discussion and further resources.
» Pediatric Database - Offers a definition, the epidemiology, pathogenesis, clinical features, investigation and management.

 
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